My beautiful twin daughters were born 8 days ago by emergency section at 28 weeks gestation. The girls were also troubled by twin to twin transfusion syndrome. The smaller, donor twin (Abigail), had dandy walker syndrome diagnosed at 17 weeks gestation. Both girls are having episodes of apnoea and bradycardia, although Abigail is experiencing more [...]

All, Thank you all so much of your kind words and support.  My sister had an amnio conducted earlier in the week, the FISH test came back negative for any of the trisomies so we have that as a plus.  She did have a second ultrasound and the Dr. said that the cyst is not [...]

Hi My name is Debbie (I am afrikaans so please forgive my english)and I also have a son that was born with DW. Today he is a healthy 13year old boy, that lives life to the full. I am so lucky to have this special boy in my life and I would like parents to [...]

My sister found out this week that her the baby she is carrying has Dandy-Walker Syndrome or Trisomy 13. I’m somewhat confused by it all but have been doing some research online. I don’t seem to find anything positive or what the chances are for the situation to not be extremely severe. She is very [...]

I too am 25weeks pregnant.  Our daughter was diagnosised with DW variant on New Year’s eve.  I have been able to find out a lot of information on-line but am still scared.  We have a five year old son who is typically developing and I worry how I will meet the needs of my youngest [...]