As an aunt I have read some articles and entries about Early Intervention. What is it and what consists of Early Intervention? Has anyone seen any difference being in it. My niece had physical therapy but hasn’t had it since she was like 4mths, is this the same? Should we ask for this to be [...]

my son is now 6 , he has cerebellar hypoplasia and a large cisterna magna found through mri scans he is also hypotonic and has global development delay , very delayed speech and delays especially in fine and gross motor skills . he is still in full time nappies too . he was very late [...]

Here I am worried of all the if’s and what’s. But one thing I have learned from all research I am doing is that only time can tell you what’s next. The hardest part was to see things through the baby’s eyes and others. When you go out and people say oh how cute she [...]

I found this site by glance. And it’s great to find and chat with others who are going through the same as you are. My niece is 8mths old and she was Dandy Walker and Rocker Bottom Foot Disorder. And we as a family are trying to understand these disorders and what to expect, but [...]

at 21 weeks of pregnancy, i was told my baby has DW, because the inferior cerebellar vermis wasn’t developed. other malformations  weren’t discovered so far, the evolution of the pregnancy is normal,  but the doctors told me that my baby might have some development problems after birth! I just want to know if this only [...]

Hi! My 12 year old  daughter was diagnosed with DWV while I was pregnant with her. She  had a shunt placed at 3 months old and revised at 9 yrs old. She seems to have a very low immune system because she has been hospitalized several times due to illness that anyone could get. She [...]

Hello new to this site. My 12 year old was not diagnosed until 3 with DWS. A cyst was found from an MRI done because he started having seizures. His developmental milestones were all delayed and his pediatrician said it was because he was just a lazy boy…After the seizures I pushed.. A lot..obviously he [...]

Hello, my name is Judy and my husband and I are in the process of adopting our 2 1/2 year old son Henry. Our Journey began 3 mos ago and we new all along he had DWS along with FAS. although we had no clue what it meant.  He is an active little boy crawling [...]