My son is 2 1/2 years old and he has been diagnosed with dandy walker variant.  He is getting physical, occupational, and speech therapy.  We have a stander and he will be getting a wheelchair.  He can sit for a couple of minutes, but he can’t crawl, walk, or talk.  He doesn’t play with toys.  [...]

Dylan’s mom ( “Success Story”)  has set up a team to run in the Portland Half Marathon, to help bring awareness and education of Dandy-Walker Syndrome, and to help support this wonderful organization-Dandy-Walker Alliance, Inc. This organization has been such a blessing to us and many parents, families, grandparents and friends of people afflicted with [...]

At a recent ultrasound appointment it was confirmed that my child has Dandy Walker. I was wondering if anyone could suggest any specialists in the Lansing/Detroit/Ann Arbor/Flint Michigan areas. I want to be sure to get my child the best possible care. Right now all of my care is going through my perinatologist but want [...]

Please give me some general information about Dandy-Walker Syndrome. My son has Dandy-Walker Syndrome, also is mentally impaired and was beaten up and suffered a very traumatic brain injury – almost died.  Please tell me if anyone could give me some information and how it affects their child. Thanks – Kathy

My husband woke up with a headache Feb 20,2011 and still has it! he is 34 years old and they say he was born with this but he never showed symptoms untill feb,20,2011 when he woke up with the headache that has never went away!! we have been to several different hospital, neurologist & neurosergons! [...]

Hi, My sister knew that she will be having baby with dandy walker syndrome when she 6-7 months pregnant. When she was about 6 months old(I guess, not so sure) she had tube installed inside the head to remove the additional water. She is now 11 months old. Last 2 weeks, she had problem with [...]

My daughter is 10 years old and she was diagnosis with the Dandy Walker Variant in Mar 2011. As a baby she had no problems. The only problem was just fall all the time. She has been referred to another doctor and as soon as I get the phone call she will be there. Just [...]

Hi, I’m a mother to Miles, 2 years old, diagnosed with Dandy Walker Variant.  Mobility is limited to army crawling, and speech contains a few sounds (no words yet).  We have been doing PT/OT/visual/speech therapies for about one year now.  Last week, we took him to San Rafael, CA for a week long intensive lessons [...]