Hi, I’m a mother to Miles, 2 years old, diagnosed with Dandy Walker Variant.  Mobility is limited to army crawling, and speech contains a few sounds (no words yet).  We have been doing PT/OT/visual/speech therapies for about one year now.  Last week, we took him to San Rafael, CA for a week long intensive lessons [...]

THREE years ago, today, my Dtr & Husband got the news that their little baby boy-Dylan-would be born with a very rare Brain Malfomation-Dandy Walker Malformation. The news was horrifying. Today-Dylan is 2 1/2 and an awesome miracle, a true blessing from God. NOT at all what we initially were led to believe. He’s walking, [...]

Hi All. My daughter, Jayme, with DW is almost 3.5 years old and still not walking.  This has been quite a hardship on my body (having to carry and lift a 38lb kiddo).  She is getting early education services in our school district and her teacher recently recommended that I look into getting a handicapped [...]

  Dears , I’m married to a beautiful wife and she is pregnant for 8 months now. Doctors told us that the child has Dandy Walker malformation and it may be sever . I want to know answers of some questions like: what are chances that child will die? And if he lived , then [...]

I was diagnosed with Dandy-Walker Syndrome and hydrocephalus 5-1/2 years ago at the ripe old age of 37.  I had no symptoms, ever, even growing up.  Looking back the only real “symptom” I ever had was an overly large head.  My grandmother used to have sew zippers into the shoulder-seam of my sweaters to get [...]

I was 33 weeks pregnant when our daughter was diagnosed with Dandy Walker Malformation at a University hospital. Five doctors walked in the room and told us their grim predictions for our unborn daughter. They spoke of mental retardation, severe developmental delays and their suspicion that she had Downs Syndrome (she doesn’t). I was amazed [...]

I am new to this website. My husband was just recently diagnoised with Dandy Walker syndrome. I am concerned because he is having a hard time keeping a job and do not know if it is from this or not. The doctors have not done anything for him. Any suggestions or help would be great

If theres anyone on here who is able to help me understand and gain more knowledge on this topic please help me.

realizing that that second hand smoke is dangerous for everyone can i find an article anywhere somewhere any where that says that smoking and dandy walker should not be accepted father with visitation rights feels smoking is fine and does not need to do anything with her theraputically