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A copy of the current financial statement of the Dandy-Walker Alliance, Inc. is available by writing to: Dandy-Walker Alliance, Inc. 10325 Kensington Pkwy Suite 384 Kensington, MD 20895 or by calling 1-877-Dandy-Walker. Documents and information submitted under the Maryland Solicitations Act are also available, for the cost of postage and copies, from the Maryland Secretary of State, State House, Annapolis MD 21401, 410-974-5534.
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Dandy Walker Malformation is gone?

I was diagnosed by multiple doctors (around 5)  with having Dandy Walker’s Malformation in utero. However, when i was born my  doctor said my brain appeared to be completely normal and the Dandy Walker’s Malformation was gone. I was wondering if I can develop Dandy Walker’s later in life. Also, could there be after-effects of the malformation as my brain continues to develop? I am 17 now.

Also, i have a venous malformation on my eye lid and was wondering if that is linked to DW in any way and if it can have negative side effects? I haven’t had any trouble with it so far.

Thank you

February 27th, 2010 | Category: General

2 comments to Dandy Walker Malformation is gone?

  • Eric
    February 28th, 2010 at 9:31 am

    Dandy-Walker is congenital which means that if someone has it that it is present from birth. Perhaps this was a case of an incorrect diagnosis in utero (which is not uncommon) or that what they suspected was the malformation was the variant or hypoplasia of the celebellar vermis. The last two are on the DW spectrum but don’t meet the clinical definition of the malformation.

    I’ve not heard of DW being linked to venous malformation. If we come across anything we will surely post it.
    Thanks,
    Eric

  • 18haditallmylife
    April 7th, 2010 at 6:17 am

    i have been told most people get it after years without it

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