Translator

A copy of the current financial statement of the Dandy-Walker Alliance, Inc. is available by writing to: Dandy-Walker Alliance, Inc. 10325 Kensington Pkwy Suite 384 Kensington, MD 20895 or by calling 1-877-Dandy-Walker. Documents and information submitted under the Maryland Solicitations Act are also available, for the cost of postage and copies, from the Maryland Secretary of State, State House, Annapolis MD 21401, 410-974-5534.

Not a Seizure but What is it

Does anyone have a child with DWS that has experienced involuntary movement of legs and arms but it was not a seizure. My daughter who is 3 years started in July extending her legs and arms in repeative fashion , moved her eyes upwards and began to sweat tremendously. At first these episodes would last 20 mins and at that point we thought it was a way of her trying to sit up on her own. Last saturnday she did it for 5 hours and we got concerned brought her to the ER. The doctors admitted her to hospital thinking it was seizures. They sedated and did a series of CT, MRI , EEG. Test reveal it was not seizures but we do not know what it is . We are still in hospital for observation and last night she had another episode of repeative leg and arm extensions for 5 hours. They sedated her again and now they are going trying giving her low dosage of sedatives every 8 hours to see if this could prevent her having these episodes.

You must be logged in to post a comment.