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A copy of the current financial statement of the Dandy-Walker Alliance, Inc. is available by writing to: Dandy-Walker Alliance, Inc. 10325 Kensington Pkwy Suite 384 Kensington, MD 20895 or by calling 1-877-Dandy-Walker. Documents and information submitted under the Maryland Solicitations Act are also available, for the cost of postage and copies, from the Maryland Secretary of State, State House, Annapolis MD 21401, 410-974-5534.

Overwhelmed

Here I am worried of all the if’s and what’s. But one thing I have learned from all research I am doing is that only time can tell you what’s next. The hardest part was to see things through the baby’s eyes and others. When you go out and people say oh how cute she is and they ask how old and you say 8mths they then turn and look and stare like what’s wrong with her. It’s very hard when you see other children her age doing things a child should do and my niece can only baby talk. One thing positive was that her eye test she passed. So I give you hope on that part she keeps her focus for sometime not too long and she will keep short contact with finger puppet we got for her. Which is good therapy for her. Just reading everyone’s blogs gives me more confort that we are not alone in this battle and also helps me prepare myself and my sister to what’s to come in the future and how to deal with things to come and how people react to the baby. Like most of everyone else it hurts not to compare with other children. One question is has anyone found any literature on children’s growth with DWS? Like the books we read now is based on child’s months and what they should be doing now. To which it doesn’t help much cause it just makes you cry and wish things were different for her.

No comments yet to Overwhelmed

  • jillian1976

    There probably will be no book to tell you what you should expect because every child is so different. I have been very lucky my daughter had a few delays in gross motor and has vision problems but is now 12 yrs old and is wonderful. She had a shunt placed at 3months old and it failed at 9yrs old and she had it replaced. She has little thing here and there but no would even know she had any problems if I didn’t tell them. We got the looks when she was a baby and had big lumps on her head from the shunt and when she was 9 when she had to shave half her head and had staples down the side but these are just things you have to hope ignorant people don’t point at. Again we have been lucky some children go through multiple shunt revisions and have physical delays that are never ending. My best advise is to take it day by day and love your child or sisters child for who they are. She will surprise you. Good luck!

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