http://www.dandy-walker.org/blog/general/seeking-options/ Hosting a forum for open dialogue about Dandy-Walker Syndrome Thu, 02 Feb 2012 19:35:01 +0000 hourly 1 http://wordpress.org/?v=3.3.1 http://www.dandy-walker.org/blog/general/seeking-options/comment-page-1/#comment-206 jillian1976 Wed, 11 Aug 2010 04:38:04 +0000 http://www.dandy-walker.org/blog/?p=675#comment-206 Hi! You also give me hope for my daughter. she is 12 yrs old and does not have tics but sways and rocks. Especially when she is not thinking about anything like watching TV or listening to music. It kinda looks like what Stevie Wonder does when he's singing and playing the piano. She doesn't even knows she's doing it and can't control it sometimes. Sometimes she doesn't do it for along time. Then starts up again. I wish i could help you with some great thing we have done to fix it or control it but we haven't had any sucess. We just let my daughter know she's doing it quietly and not obvious so if she can stop she does. Some people have made in fun of her for this so she's glad when we tell her. If you have any other questions or would like to share your story with my daughter you can email us jildegraced@sbcglobal.net. Hi!
You also give me hope for my daughter. she is 12 yrs old and does not have tics but sways and rocks. Especially when she is not thinking about anything like watching TV or listening to music. It kinda looks like what Stevie Wonder does when he’s singing and playing the piano. She doesn’t even knows she’s doing it and can’t control it sometimes. Sometimes she doesn’t do it for along time. Then starts up again. I wish i could help you with some great thing we have done to fix it or control it but we haven’t had any sucess. We just let my daughter know she’s doing it quietly and not obvious so if she can stop she does. Some people have made in fun of her for this so she’s glad when we tell her. If you have any other questions or would like to share your story with my daughter you can email us jildegraced@sbcglobal.net.

]]> http://www.dandy-walker.org/blog/general/seeking-options/comment-page-1/#comment-88 tuckershelly Thu, 31 Dec 2009 03:07:52 +0000 http://www.dandy-walker.org/blog/?p=675#comment-88 I just want to say thank you to you for sharing your story. Though I cannot help you, you have helped me by shedding Light and giving me HOPE for my daughter who is still a baby that she can function in society. I wish you peace, and hope you find the answers you are looking for. I just want to say thank you to you for sharing your story. Though I cannot help you, you have helped me by shedding Light and giving me HOPE for my daughter who is still a baby that she can function in society. I wish you peace, and hope you find the answers you are looking for.

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