Translator

A copy of the current financial statement of the Dandy-Walker Alliance, Inc. is available by writing to: Dandy-Walker Alliance, Inc. 10325 Kensington Pkwy Suite 384 Kensington, MD 20895 or by calling 1-877-Dandy-Walker. Documents and information submitted under the Maryland Solicitations Act are also available, for the cost of postage and copies, from the Maryland Secretary of State, State House, Annapolis MD 21401, 410-974-5534.
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Writing Book

Hi Everyone. Ever since my research on DWS I have been interested and thinking about it nonstop. For the past few months I have decided that I want to write a book on DWS. I feel that this will not only benefit people but it will make me the happiest person alive to teach people about DWS. My experience while researching DWS was not only wonderful but an experience I believe will always stay with me because it taught me so much and open a door I never want it to close. I want me book to not only teach people about DSW but also help anyone who has DWS. I also want this book to be a comfortable read and includes something for everyone.  

If you have any suggestions about what you would want to see in a book about DWS or any insight you have, any information please let me know. Your suggestions and information will seriously be taken into account. If you also have any questions for me, please ask.

March 3rd, 2010 | Category: General

2 comments to Writing Book

  • Hiara
    September 5th, 2010 at 4:19 pm

    I am very happy to you are writing a book about DWS. So many people especially in the medical field either know little about or never came across a patient with it. I would like to ask you if during your research did you come across a patient who experienced involuntary movement of legs and arms but it was not a seizure. My daughter who is 3 years started in July extending her legs and arms in repeative fashion , moved her eyes upwards and began to sweat tremendously. At first these episodes would last 20 mins and at that point we thought it was a way of her trying to sit up on her own. Last saturnday she did it for 5 hours and we got concerned brought her to the ER. The doctors admitted her to hospital thinking it was seizures. They sedated and did a series of CT, MRI , EEG. Test reveal it was not seizures but we do not know what it is . We are still in hospital for observation and last night she had another episode of repeative leg and arm extensions for 5 hours. They sedated her again and now they are going trying giving her low dosage of sedatives every 8 hours to see if this could prevent her having these episodes.

  • jennifer.polo
    September 8th, 2010 at 10:34 am

    Thank you very much for responding to my post. I hope very much that everything goes well with your daughter and the doctors can find an answer to help her.
    The patient I met had involuntary eye movement from side to side. I do not remember any extending of the legs but he would have some of his arms but for a very short period of time which I only saw once or twice.

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