Events

2014


Jan
11

Florida Everblades Hockey Night

The Florida Everblades are hosting a Dandy-Walker awareness night Jan 11, 2014. Tickets will be available in September for $19. $10 will be donated to Dandy-Walker Alliance for every ticket purchase!


Apr
12

Abby’s Run for Dandy-Walker

Frisco, TX
Abby’s Run for Dandy-Walker Syndrome is a 5K/1-Mile Run in Frisco, Texas on April 6, 2013 benefiting the Dandy-Walker Alliance.

May
17

2013

Apr
06

Abby’s Run

Abby’s Run for Dandy-Walker Syndrome is a 5K/1-Mile Run in Frisco, Texas on April 6, 2013 benefiting the Dandy-Walker Alliance.

Apr
21

May
19

May
19

Lakaya’s 1st Annual Car Show, Hosted with BSL

Proceeds Benefit Dandy-Walker Alliance, Sunday May 19th Noon-6 pm
Held at Freddy’s Frozen Custard, 1525 S. Service Road, Moore, OK 73160; Registration fee-$20. Registration hours Noon-2pm. Entry fee includes Goodie Bag and Raffle Ticket; Top 20 Trophies and more food and free drinks, door prizes and 50/50 drawing along with a DJ
For more information: Dolores Collins, 405.795.3447 or dolorescoll7@yahoo.com

Jun
27

Washington Nationals DWA Awareness Day


Aug
22-23

3rd Annual Hydrocephalus Awareness Day on Capitol Hill

http://phfcapitolhill.eventzilla.net/


Sept
21

Tommy’s Run for Dandy Walker

Find us on Facebook


Oct
11

Deloitte Golf Tournament


Our Walk/Run Guide is now available!
Walk/Run Guide. Be sure to check out our CrowdRise page for fundraising tips and tool you won’t want to miss!

Would you like to have a Walk/Run fundraiser in your area?

2012

Oct
21

Lucas’ Memorial Walk/Run for Dandy-Walker

SAVE THE DATE for the Southern California Dandy Walker Awareness Event Sunday, October 21st 7am-11am
“Lucas’ Memorial Walk/Run for Dandy-Walker”
Join us as we celebrate the life of Lucas Sebastian Allen on his first birthday, born with Dandy-Walker Variant and passed away with complications after 39 beautiful days with his loving family. Please join us to honor Baby Lukey’s memory, increase awareness of the Dandy-Walker Syndrome and raise funds for the Dandy Walker Alliance.

Fundraising Website and Event Details to Launch July 21st.

Location: St. Joseph High School
Address: 5825 N Woodruff Ave
Lakewood, CA 90713 (5 miles away from the Long Beach Airport)

Past Events

Dandy-Walker Alliance Walk/Run 

What do you get when you cross Southern hospitality, a good cause and a gulley washer?  You get the First Annual Dandy-Walker Syndrome and Hydrocephalus Awareness Run-Walk!

Not even the rain could dampen the enthusiasm that consumed the South Lamar School gymnasium and cafeteria in Millport, Alabama on Saturday, September 26.  There were walkers walking, runners running, jumpers jumping and all were advocating for Dandy-Walker Syndrome and hydrocephalus. If you missed this event you won’t want to miss the next one.

 Special thanks to South Lamar School, all the donors, volunteers and participants!

Ryan and Emily with "The Big Check"
Ryan and Emily with “The Big Check”

 

Banner donated by Bishop Sign Co.

Don displaying a sign donated by Bishop Sign Co.

 

 

To print a flyer for this event click here