House Concurrent Resolution 163 passed the House on June 26, 2008 and agreed to in the Senate without amendment and by unanimous consent on September 22, 2008.
President George W. Bush appoints Dandy-Walker Alliance member to the President's Committee for People with Intellectual Disabilities for a two-year term beginning May 12, 2008.
The Official Parent's SourceBook on
Dandy-Walker Syndrome
by Health Publica Icon Health Publications ISBN: 0597836760.
A copy of the current financial statement of the Dandy-Walker Alliance, Inc. is available by writing 4422 Clearbrook Lane Kensington, MD 20895 or by calling (301) 919-2653. Documents and information submitted under the Maryland Solicitations Act are also available, for the cost of postage and copies, from the Maryland Secretary of State, State House, Annapolis MD 21401, (410) 974-5534.
Dandy-Walker Bulletin Thanks to an effort led by Mia Troxel and her family Indiana Governor Mitch Daniels signed a proclamation declaring May 2009 as Dandy-Walker Syndrome and Hydrocephalus Awareness Month.
A grass root letter writing campaign in Illinois secured a proclamation from Governor Pat Quinn declaring May 2009 as Dandy-Walker Syndrome and Hydrocephalus Awareness Month.
On May 13 Nebraska Governor Dave Heineman is signing a proclamation to declare May 2009 as Dandy-Walker Syndrome and Hydrocephalus Awareness Month. Contact Terri Eldridge for more info.
Please visit Elsevier's site by clicking on their logo above and thank them for allowing us to bring you these peer reviewed medical journal articles for free.
The Journal of Neurosurgery has generously granted the Dandy-Walker Alliance permission to bring you the full copyrighted texts of:
Please send the Journal of Neurosurgery a thank you note for their generousity at jneuro@thejns.org for allowing us to bring you these articles for free.
What
is Dandy-Walker?
A congenital brain malformation involving
the cerebellum (an area at the back of
the brain that controls movement) and
the fluid filled spaces around it. The
key features of this syndrome are an enlargement
of the fourth ventricle (a small channel
that allows fluid to flow freely between
the upper and lower areas of the brain
and spinal cord), a partial or complete
absence of the cerebellar vermis (the
area between the two cerebellar hemispheres),
and cyst formation near the internal base
of the skull. An increase in the size
of the fluid spaces surrounding the brain
as well as an increase in pressure may
also be present. The syndrome can appear
dramatically or develop unnoticed. Symptoms,
which often occur in early infancy, include
slow motor development and progressive
enlargement of the skull. In older children,
symptoms of increased intracranial pressure
such as irritability, vomiting, and convulsions,
and signs of cerebellar dysfunction such
as unsteadiness, lack of muscle coordination,
or jerky movements of the eyes may occur.
Other symptoms include increased head
circumference, bulging at the back of
the skull, problems with the nerves that
control the eyes, face and neck, and abnormal
breathing patterns. Dandy-Walker Syndrome
is frequently associated with disorders
of other areas of the central nervous
system including absence of the corpus
callosum (the connecting area between
the two cerebral hemispheres), and malformations
of the heart, face, limbs, fingers and
toes.
What is the Dandy-Walker Alliance?
The Dandy-Walker Alliance, Inc. is a not-for-profit
organization recognized as tax-exempt under
Internal Revenue Code section 501(c)(3). In
giving to the Dandy-Walker Alliance, you help
us continue our commitment to providing educational
and informational activities, programs and publications
and supporting non-partisan research and events
to increase public awareness for Dandy-Walker
Syndrome. We support all efforts to determine
the cause(s) of, find the cure for and to ameliorate
the effects of Dandy-Walker Syndrome. Donations
directly to the Dandy-Walker Alliance are tax
deductible to the extent permitted by law. Please
consult your tax advisor for more information
concerning the tax treatment of donations to
the Dandy-Walker Alliance. Read more
Florida's
Blood Centers teamed up
with the Blackwell family and Orlando's
WFTV Channel 9 to create
a promotional commercial
that educates the community about maintaining
a safe and adequate blood supply and
also raise awareness for Dandy-Walker
Syndrome.
If you have information that
you would like to have considered for
inclusion on this site please e-mail
it to us at submission@dandy-walker.org.
Note: This material is for
informational purposes only and does
not constitute medical advice. The opinions
expressed in this paper are those of
the author's and not necessarily those
of the Dandy-Walker Alliance.
Read the 
